Angie Bellephant offers the first book about losing a child to a rare congenital birth defect called Potter's Syndrome, otherwise known as Bilateral Renal Agenesis (the absence of kidneys). Titus also had Branchio-oto-renal (BOR), a dominant genetic condition that can result in kidney anomalies. Angie's story of choosing to carry her son full term, saying goodbye to him during his 15 hours of life, and turning her mourning into glory will touch those who face a Potter's diagnosis, infant loss and medical experts who work with expectant parents and newborns. Resources are provided for further information about Potter's and BOR.

Funded by the University of Iowa Potter's Syndrome Research Group

Written by Tracy Ahrens